Site Index
A B C D E F G H I J K L M N O P Q R S T U V W X Y Z
A
adolescent cancer care issues (treatment at pediatric/adult centers, clinical trials)
airline flights (resources)
ALCL, anaplastic large cell lymphoblastic leukemia
ALL, acute lymphoblastic leukemia (ALL section)
- bibliography
- cell types (pre-B, T-cell)
- chromosomal abnormalities (recurrent, significant)
- clinical remission
- clinical trials: our long list of them for ALL
- clinical trials: overview (ALL clinical trials page)
- clinical trial: should you choose to do one or not
- clonal disease
- CNS disease
- consolidation treatment
- Cure of Childhood Leukemia, link to book and web site
- cytogenetics
- FAB classifications (morphology)
- FISH (fluorescent in situ hybridization) - explained and use in MRD
- flow cytometry (in MRD section and also in cell type section)
- gene expression profiling
- hyper/hypodiploidy
- immunological classification
- induction treatment
- karyotype
- leukocyte antigen panels
- maintenance treatment
- methotrexate: HD vs LD in ALL clinical trials
- molecular characterization
- new treatments (or new drugs)
- phenotypes
- Philadelphia chromosome
- pre-B, B, early pre-b
- prognosis factors (and the author's essay on prognosis factors)
- symptoms
- tests used in the diagnosis/classification of leukemia, summary
- TPMT (and 6MP)
- translocations (recurrent/significant) and translocations explained with good reference/educational links
- treatment
- treatments - new directions and possibilities (on the ALL-kids website)
- trisomy
- web sites that offer good technical/research information
ALL-kids mailing list (mail list page or direct)
ALL-kids-relapsed mailing list (mail list page or direct)
ametop (local anaesthetic)
ANC (blood counts page)
angeling organizations (family issues, miscellaneous links area)
anthracyclines
antibiotics, preventative or prophylactic
antieptilectics in the treatment of ALL
awareness (of childhood cancer, raising)
B
back-to-school issues (also see education, below)
- parents' comments and advice to other parents
- school letters (like the chicken pox letter, others)
- videos (like Charlie Brown)
baskets (items to put in baskets for parents in hospitals)
bears for kids on treatment (family issues, miscellaneous links area)
- books, all ages
- e-mail support lists
- funeral costs
- grief links
- memorials
- preparing the child
- resources
- videos
bibliographies (lists of pertinent journal articles)
- ALL (acute lymphoblastic leukemia)
- ALL, MRD (more recent papers)
- ALL, MRD (papers referenced in MRD section)
- causes of childhood cancer
- causes of leukemia
- cognitive late effects
- education issues
- late effects
- survivors
- relapsed ALL
blankets for cancer kids (family issues, miscellaneous links area)
blood cells/counts
- blood counts (general information)
- blood panel profiles for leukemia and lymphoma (link to)
- details on blood components and cell types (links)
- BMT-talk e-mail list
- definition of terms
- doing a drive for donors (good comments)
- FAQs and also in parents' comments
- links to informative sites
- overview (how they are done)
- parents' comments on BMTs
- possible complications
body surface area (in drug dosing, includes a link to calculator)
bone cancers
bone marrow transplants (see BMT)
books (on childhood cancer issues)
BSA (see body surface area)
C
CAM (please see complementary and alternative listing, below, for details)
cancer kid web pages, personal, grand listing
cancer.gov childhood cancer link
Candlelighters Newsletters: My Table of Contents
candles (family issues, miscellaneous links area)
cardiology tests (late effects to the heart)
cardiotoxicity (late effects)
CBC, complete blood count - defined
charities: how to determine if they are valid
chemo angels (family issues, miscellaneous links area)
- administration methods
- drugs
-
- ALL-specific new drugs
- compassionate use section new drugs
- links in chemotherapy section new drugs
childhood cancer awareness
- organizations: about, and short list of
- organizations: long list
- projects (miscellaneous, like the postage stamps)
childhood cancer ombudsman service
childhood cancer support organizations
Childrens Oncology Group Patient Advocate Committee
- ALL trials
- full trial document (what it is, parents right to have)
- phases of trials
- web sites that list childhood cancer clinical trials
cognitive late effects: information and IEPs
college scholarships for survivors (and siblings)
complementary and alternative therapies
- alternative therapies: specifics on several types
- alternative therapies: some big names
- book reviews
- focus on alternative therapies
- focus on complementary therapies
- links to suggested reference sites on CAM
computer programs about cancer (for kids)
coping (parents, when your child has cancer)
cord blood storage (free sibling, Oakland Childrens)
cover ups for central lines (family issues, miscellaneous links area)
CT (complementary therapy)
Cure of Childhood Leukemia, book and web site
D
dexrazoxane (Zinecard®)
- of genetic terms: both in the glossaries section on the translocations page
do's and don't's (how to help friends who have kids with cancer)
drug dosing (BSA links)
E
- courtesies
- list rules - about and direct link
- listserves, some terms used
- privacy
- subscription options
- what to expect
- articles on the web on educating the child with cancer
- bibliography
- books
- legal rights
- off-treatment issues (cognitive late effects)
- on-treatment issues
electromagnetic fields and childhood cancer (including leukemia)
emoticons and slang (also on family rules)
emotional support
- arsenic in decks
- environmental groups (active in issues of environment/childhood cancer)
- lawn care
- toxics information - links to web sites that give this info
F
Family Medical Leave Act (FMLA) - see the articles in the Candlelighters quarterly journals
fertility issues: on-treatment and survivorship fertility issues
flow cytometry (explained, in MRD testing, and links to more info)
full clinical trial document (parents right to have)
G
games - online - for cancer kids
gene expression profiling (ALL)
genetic terms, defined: both in the glossaries section on the translocations page
gift baskets for parents (what to include)
government agencies (helpful to parents of kids with cancer)
grief (see bereavement)
H
Horses for Hope (wish granting, also sort of like "camp")
hyper/hypodiploidy (ALL)
I
IEP (Individual Education Plan)
- cognitive late effects suggestions (off-treatment suggestions)
- on-treatment children suggestions
IM, intramuscular (explained)
IT, intrathecal (explained)
IV, intravenous (explained)
J
journal articles (also see "bibliographies")
K
karyotype (ALL)
kidney protectors - sports pads
Kimo bears for chemo kids (in the miscellaneous section)
L
- AVN
- cognitive effects
- education comments (not all are late effect specific)
- heart
- hepatitis C
- late effects articles online
- late effects bibliography
- late effects clinics
- late effects guidelines link (COG)
- leukoencephalopathy
- other: links to info on specific late effects
- teeth
- thyroid
leukemia (for ALL specifically, see ALL)
lodging (while staying at hospitals)
love quilts (to make a child smile; in the miscellaneous section)
LP, lumbar puncture (explained)
M
make a child smile (in the miscellaneous section)
make-a-wish
medical procedures - explained
- glutamine
- hot stuff
- mouth care during treatment
- mouth washes (anti-fungal/anti-bacterial)
- mouth sores: remedies
- preventing oral infections and tooth decay
MRD, minimal residual disease (focus on in ALL)
MRI scans
N
NCI facts sheets, list of available
neutropenic
newly discovered drugs and new treatments
NHL (non-Hodgkins lymphoma)
O
off-treatment list (ped-onc-survivors)
P
PAC, Patients Advocate Committee (COG)
- books
- pain caused by treatment
- pain control for procedures (anesthesia and skin-numbing)
PCR
ped-onc e-mail list (or direct link to subscription page)
ped-onc-survivors e-mail list
pesticides (etc.) and leukemia
pets in the house while on therapy
pills
PO (taken orally)
- care tidbits: parents' comments page
- cover ups (in the miscellaneous area)
- swimming with, sports, precautions, etc. and also the parents' comments page
post pals (in the miscellaneous area)
Project Linus (in the miscellaneous area)
protectors
- central lines
- sports pads (kidney protectors)
psychological support
public school and childhood cancer
Q
quilt - childhood cancer awareness
quilts for kids (in the miscellaneous area)
R
radiation
- late effects of radiation therapy to the heart
- levels of in baby teeth (Tooth Fairy Project)
- radiation therapy
randomization in clinical trials
rhabdoid tumors (a rare cancer, try the homepages); also, included in an article in the Fall 2003 Candlelighters Newsletter)
S
Sammie's Tops (in the miscellaneous area)
scans (CT, MRI, nuclear medicine imaging)
scholarships (college, for survivors and siblings)
seeking new treatments (essay by Honna)
segs and bands - defined
SIADH during treatment
smile quilts (in the miscellaneous area)
songs for cancer kids (in the miscellaneous area)
songs of love (in the miscellaneous area)
Southern blots (restriction enzymes, in MRD)
spinals - explained
SQ, subcutaneous - explained
statistics of childhood cancer incidence
"Stories and Faces" pages, personal web page grand listing
swimming with a port (right atrial catheter)
T
talking glossary of genetic terms
Tay bears for chemo kids (in the miscellaneous area)
teen cancer care issues (treatment at pediatric/adult centers, clinical trials)
teeth
tooth decay, proper eating to prevent
Tooth Fairy Project (levels of radiation in baby teeth)
TPMT (and 6MP)
translocation (ALL)
treatment for childhood cancers
treatments, new, and new drugs
trisomy (ALL)
U
V
videos relevant to childhood cancer
W
WBC, white blood counts
web pages, personal, of cancer kids
web sites (links to external)
what cancer parents do not want you to say to them
what you can do to help a cancer family
wishes
- denial of a wish because of the type of cancer
- how to go about getting a wish for your child
- wish organizations (long list of)
work issues (family leave - FMLA) - see the articles in the Candlelighters quarterly journals
X
Y
young adult issues - some resources on the teen cancer page
youth issues, resources
Z
Zinecard® (dexrazoxane)
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