Resources and information for parents of children with cancer . . . by parents of children with cancer.

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Common Childhood Cancers

The "NCI site" referred to below is the National Cancer Institute website, part of the National Institutes of Health (NIH). In my opinion, this is the best resource for information on childhood cancers and their treatments.

links updated Jan 2018

Bone Cancers

Book: Childhood Cancer: A Parent's Guide to Solid Tumor Cancers, 3rd ed., Anne Spurgeon and Nancy keene, 2016. (Childhood Cancer Guides)

On this ped-onc site: Warning Signs of Childhood Cancer: Bone Cancers

Osteosarcoma

Osteosarcoma on the NCI site

Ewing's Sarcoma

Ewing's Sarcoma on the NCI site

More bone cancer links

Sarcoma Alliance

The Liddy Shriver Sarcoma Initiative

The Cure Our Children Foundation

Brain and Spinal Cord Tumors

Book: Childhood Brain and Spinal Cord Tumors: A Guide for Families, Friends and Caregivers, Tania Shiminski-Maher, Catherine Woodman, Nancy Keene, 2014, 2nd edition. (Childhood Cancer Guides)

On the NCI site: Childhood Brain and Spinal Cord Tumors

Classification of Central Nervous System Tumors

On this ped-onc site: Warning Signs of Childhood Cancer: Leukemia

Germ Cell Tumors

Book: Childhood Cancer: A Parent's Guide to Solid Tumor Cancers), 3rd ed., Anne Spurgeon and Nancy keene, 2016. (Childhood Cancer Guides

On the NCI site: Childhood Extracranial Germ Cell Tumors

Leukemias

Book: Childhood Leukemia: A Guide for Families, Friends, and Caregivers, 4th ed., by Nancy Keene, 2010. (Childhood Cancer Guides)

On this site: Warning Signs of Childhood Cancer: Leukemia

Childhood Acute Lymphoblastic Leukemia, ALL
Original section on this ped-onc site.

ALL on the NCI site

The ACOR childhood ALL email list (ALL-kids)

The ACOR relapsed childhood ALL email list (ALL-kids-relapsed)

Childhood Acute Myeloid Leukemia, AML

AML on the NCI site

Chronic Myelogenous Leukemia, CML

CML on the NCI site

Lymphomas

Book: Childhood Cancer: A Parent's Guide to Solid Tumor Cancers, 3rd ed., Anne Spurgeon and Nancy keene, 2016. (Childhood Cancer Guides

Childhood Hodgkin lymphoma on the NCI site

Childhood Non-Hodgkin Lymphoma on the NCI site

On this ped-onc site: Warning Signs of Childhood Cancer: Lymphomas

More lymphoma links

Lymphoma Research Foundation (LRF)

NHL cyber family Web Site

Neuroblastoma

Book: Childhood Cancer: A Parent's Guide to Solid Tumor Cancers, 3rd ed., Anne Spurgeon and Nancy keene, 2016. (Childhood Cancer Guides

Neuroblastoma on the NCI site

On this ped-onc site: Warning Signs of Childhood Cancer: Neuroblastoma

The ACOR neuroblastoma list (N-blastoma).

Children's Neuroblastoma Cancer Foundation (CNCF )

The Neuroblastoma Children's Society

Soupy for Loopy Foundation. A nonprofit organization that is committed to raising awareness and funds to find a cure for neuroblastoma. Links to information on neuroblastoma.

Retinoblastoma

Retinoblastoma on the NCI site.

Childhood Cancer: A Parent's Guide to Solid Tumor Cancers , 3rd ed., Anne Spurgeon and Nancy keene, 2016. (Childhood Cancer Guides)

On this ped-onc site: Warning Signs of Childhood Cancer: Retinoblastoma

Rhabdomyosarcoma

Book: Childhood Cancer: A Parent's Guide to Solid Tumor Cancers, 3rd ed., Anne Spurgeon and Nancy keene, 2016. (Childhood Cancer Guides)

Childhood Rhabdomyosarcoma on the NCI site

On this ped-onc site: Warning Signs of Childhood Cancer: Rhabdomyosarcoma

The ACOR rhabdomyosarcoma email list (Rhabdo-kids)

The Liddy Shriver Sarcoma Initiative.

The Sarcoma Alliance Information on treatment options; a great resource founded by patients and parents.

Northwest Sarcoma Foundation

Wilms Tumor and other childhood kidney tumors.

Book: Childhood Cancer: A Parent's Guide to Solid Tumor Cancers, 3rd ed., Anne Spurgeon and Nancy keene, 2016. (Childhood Cancer Guides)

Cancerous tumors on the kidney on the NCI site

On this ped-onc site: Warning Signs of Childhood Cancer: Wilms' Tumor

The ACOR Wilms email list (Wilms-kids).

Another Wilms Tumor link

National Wilms Tumor Study Group

General Disclaimer

These pages are intended for informational purposes only and are not intended to render medical advice. The information provided on Ped Onc Resource Center should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you suspect your child has a health problem, you should consult your health care provider.

© copyright 1998-2018 by Patty Feist

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