Resources and information for parents of children with cancer . . . by parents of children with cancer.

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Links to Internet Resources on Childhood Cancer

This page lists the best (IMHO) sites for childhood cancer and for cancer in general. I call it the "Ped-Onc Editor's Choice Links Page". They are sort of arranged from favorite to less-informative, but each is worth a visit.

Also see these other lists on this site:

Childhood cancer non-profit national organizations

Childhood cancer non-profit, regional organizations are listed on another ped-onc page. These organizations are helpful for services such as financial help and ways to connect with other parents.

National Cancer Institute

Cancer.gov

What I like about cancer.gov is the depth of information on all types of cancer. I tend to read the "Health Professionals" version of all documents. No other site goes into such detai. They also have patient versions of the information.

The National Cancer Institute (NCI) is a division of the National Institutes of Health (NIH). It is the Federal Government's principle agency for cancer research and training.

American Society of Clinical Oncology (ASCO)

www.cancer.net

NCI's PDQ® pediatric treatment cancer information summaries explain diagnosis, staging, and treatment options for children's cancers.

Complete information on all cancer types, from diagnosis to treatment to coping issues. Especially strong on disease descriptions.

St. Jude's Children's Hospital

St. Jude's

Complete information of childhood cancers: PDQ Cancer Information Summaries

St. Jude Children's Research Hospital is known throughout the world for its clinical and scientific contributions to the fight against catastrophic childhood diseases. The site offers information on its latest research results, as well as disease descriptions. The section called Cure4Kids (requires a login) has the latest on treatments for childhood cancers, written for health care professionals.

M. D. Anderson Cancer Center

M. D. Anderson Cancer Center, Children

M. D. Anderson offers an experienced team of specialists and innovative technologies and treatments for pediatric cancers. They offer clinical trials sponsored both by COG and by their own institution. The web site offers good information on the different childhood cancers and their treatment, as well as useful information on coping with treatment.

Childhood Cancer Guides

Childhood Cancer Guides

Resources for parents of children with cancer. Content is from the books on childhood cancer and leukemi co-authored by Nancy Keene.

Alex's Lemonade Stand Foundation

www.alexslemonade.org

Alex's Lemonade Stand Foundation (ALSF) raises awareness and funds grants for childhood cancer research and offers webinars and symposiums on childhood cancer. Alex's also has a treatment journal for families to keep track of all childhood cancer related information.

Bandaides and Blackboards

Bandaides and Blackboards

Bandaides and Blackboards has been around for a couple decades, and is less frequently updated but still an old favorite of mine. Bandaides and Blackboards is about growing up with medical problems. Although not childhood cancer specific, this is a friendly and useful site.

Dana Farber Cancer Institute

Dana Farber Cancer Institute

The pediatric cancer section of the Dana Farber Cancer Institute site is well-organized and easy to navigate. The site features personal profile stories, information on research in progress at Dana Farber, a link to the Perini Clinic (survivors' program), some helpful information on cancer family issues, and information about the clinic.

 

Memorial Sloan-Kettering Cancer Center

Memorial Sloan-Kettering Cancer Center

The pediatric section of the MSKCC was added to the main site 6/01. It contains information about individual pediatric cancers and bone marrow transplantation, but more importantly, perhaps, it lists ongoing pediatric clinical trials and various treatments available at Memorial Sloan-Kettering Cancer Center's Pediatric Cancer Care. Be sure to check out the disease-specific areas for cancer informaiton and also for new treatments offered by MSKCC.

American Cancer Society

ACS

"Knowledge is power. For the cancer patient, knowledge means the power to understand your specific disease and the best treatment options available." This is a direct quote from one of the ACS pages, and as a mission statement, it is reflected throughout the site. This site has pages and pages of text written to help the cancer patient of all ages. It also offers practical support ideas and contacts for family members.

OncoLink: A University of Pennsylvania Cancer Center Resource

OncoLink

OncoLink was the first cancer information website on the Internet, started in 1994. Today it is still a good resource for parents of children with cancer. This link takes you directly to the childhood cancer section. Copyright trustees of the University of Pennsylvania.

Children's Cancer Web: A Guide to Internet Resources for Childhood Cancer

ChildrensCancerWeb

Established in 1994, this site of annotated links to childhood cancer information is still updated. Worth a look.

General Disclaimer

These pages are intended for informational purposes only and are not intended to render medical advice. The information provided on Ped Onc Resource Center should not be used for diagnosing or treating a health problem or a disease. It is not a substitute for professional care. If you suspect your child has a health problem, you should consult your health care provider.

© copyright 1998-2018 by Patty Feist

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